Relapse Journey

Week 2, Day 9

Re-induction phase
Purpose : remove all visible signs of Leukaemia & allow normal cells to be restored.

Week 2, induction, day 9: Bella went into theatre this morning for her LP (intrathecal methotrexate). She also had a nasogastric (NG) tube inserted.

Over the past week, she has been exceptionally tired & constipated due to the chemo. Her platelets are only 29, neutrophils 0.69. She is eating really well due to the dexmethosone (steroids).

It became increasingly difficult for Bella to swallow all of her medications pertinent to her care, hence we have opted to have the NG tube inserted early into her treatment. It allows the wonderful nurses to ‘flush’ all oral meds down the tube without Bella having to take them. Later down the track it will also allow the oncology team to organise nutrition via thd NG tube when she cannot maintain a healthy diet due to the chemotherapy treatment.

The NG removes one extra clinical process, which is often traumatic & challenging thing for anyone having to take up to 10 medications daily, let alone a 7 year old.

We are so very proud of the way she has carried herself these past 2 weeks. It’s a very overwhelming journey but she has taken it all in her stride.

After 12 days in a double room we’ve finally moved into a single room. Yay! Hopefully will have a more well-rested sleep!

Team Bella: Never give up! 💙💚💛💜

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