Relapse Journey

Day 95

Pre B, ALL Standard Relapse

They say “every cloud has a silver lining”. Team Bella certainly breathed this philosophy this week.

It started out as a pretty devastating week, with Bella not opening her eyes at all, due to ARA-C toxicity. The chemo drug has known side affects associated with your eyes. It causes death of the rapidly producing epithelial cells on your cornea & prevents them from regenerating. This in turn, prevents Bella’s eyes from having a protective layer atop. She was in extreme pain each time she opened her eyes (e.g any air that passed over her eyes, caused a severe burning sensation) & photosensitivity (i.e to light). She struggled with using her eyes so she closed them shut. She practically lived like a visually impaired person to cope with the side-effects of the toxic chemo drug.ย ๐Ÿ˜”

I called for a opthomologist to review her eyes. Dr Michael arrived Wed night & had a beautiful bedside manner. He was patient with Bella as she was screaming out in pain each time he wanted to lift her eyelid.

He persevered, & slowly she allowed the numbing drops to go in so he could examine her eyes. Following the consultation, he prescribed a different steriod (Maxidex) which would be more effective & potent to help improve her condition. He also prescribed polygel/polyvisc to help relieve the syptoms she was experiencing.

As per previous post, on Tue 20/6 we discovered that both of Bella’s BMT donors had fallen through (one had been an 8/10 & the other 9/10 HLA Match). This left Bella with the 2nd best option to have a Haplo transplant, receiving either one of her parents marrow or stem cells.

Following a comprehensive blood analysis, on Friday morning, RMH gave me a call to inform me that the Children’s Hospital had decided Bella would be receiving my STEM CELLS to go to transplant. I was overwhelmed with emotion upon taking the call. This would hopefully provide her with an option for survival & to beat leukemia.

Mother & daughter have truly come full circle. I hope that the 5/10 match for us can be compensated by the new marrow from mummy. Given to Bella with the deepest love & hope that she survives this re-birth in July (1 month short of her 8th birthday ). It is beautiful to give the gift of life- more so to give a second chance at life to my off-springย โค. Aint life grand?

The week just kept on getting better. Late Fri morning, after a blood transfusion the day before, & new eye medications administered, Bella slowly opened her eyes!! With symptoms abating & haemoglobin coursing through her viens, with the aid of my beautiful sisterย Elaineย we got our fully functioning Bella back! Woot!Woot!!

Then this weekend we commenced the Team Bella backyard blitz/working bee. The weather was on our side!!! A balmy 13 degrees celcius brrrr (we could not complain-no rain).

I can’t wait for this dream play space to be completed. Made with so muchย โคย to provide a private space for Bella to escape into a magical world where cancer & pain does not exist. Where mummy doesn’t have to make decisions on her behalf. Where she can have uninterrupted play with Chibi/Olivia. Bella will have FULL CONTROL. To reclaim her CHILDHOOD & LIFE back.

Thank you to every single person who has contributed in some way-through the positive love, encouragement, prayers & fundraising to make this happen. Or by giving blood or becoming a bone marrow donor. Our family are deeply grateful.ย ๐Ÿ˜๐Ÿ˜๐Ÿ˜

Love, light & positive energy to you all!!!

Childhood cancer awareness!ย ๐ŸŽ—๐ŸŽ—๐ŸŽ—๐ŸŽ—๐ŸŽ—

Team Bella: Never give up! Let’s beat this together!!ย ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘

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